I am raising money for... my daughter, Emma. She was born with
Cerebral Palsy Spastic Diplegia. She also has Type 1 also called Juvenile
Diabetes.
Emma has on going physical therapy needs, specialized equipment, diabetic
specialists, neurologist, endocrinologist for her diabetes, has had to undergo
colonoscopy and endoscopy for stomach issues related to her spasticity, requires
daily insulin, insulin pump equipment, multiple medications and more. Currently
we are preparing for her SDR surgery which is in another state. We will need
funds for her co-pay as well as funds to stay in the same city and care for her
needs afterwards.
The money collected will go towards...
The money collected will go towards...
1. Surgery Known as SDR Selective Dorsal Rhyzotomy which will release the
tension caused by the spasticity so that Emma can be more functional, walk with
more ease and have far less pain This surgery will improve her quality of life
as she gets older as well.
http://www.stlouischildrens.org/content/medservices/AboutSelectiveDorsalRhizotomy.htm
2. A place for family to stay while Emma is in the hospital.
3. Travel expenses.
4. Care for our pets while away from home.
5. Insulin, Insulin Pump Supplies, on going physical therapy which will not
be covered by insurance, insurance co-pays, chiropractic care, diabetic
specialists, and all other necessary medical expenses which are on-going.
6. Specialized equipment from braces, shoe inserts, treadmill, stationary
bike, stretching equipment, etc.
7. Family YMCA membership so Emma can use their pool for non invasive
conditioning and strength development. A family membership allows my husband and
myself to be able to go with her and assist her.
We realize there are many in need in the world and I waited a very long time to ask for assistance however with the economy, my daughter's on going expenses and needs, it is difficult to be able to make the income necessary to give her a viable life. I am in fear she will have failure to thrive if we do not get her the help she needs. I commend you for looking over the listings here and making donations where and when you can regardless of if for my family and my daughter or someone else's family. Thank you for your consideration.
We realize there are many in need in the world and I waited a very long time to ask for assistance however with the economy, my daughter's on going expenses and needs, it is difficult to be able to make the income necessary to give her a viable life. I am in fear she will have failure to thrive if we do not get her the help she needs. I commend you for looking over the listings here and making donations where and when you can regardless of if for my family and my daughter or someone else's family. Thank you for your consideration.
With love,
Joely and Emma
Update from Joely's blog:
Its been awhile. I want to let my readers know I am still
out here. A lot of things have happened since my last post and many positive
changes. Due to this I also have been limited in the amount of time I have to
blog. My daughter had spinal surgery for her cerebral palsy and
so far we have had wonderful results. The surgery has reduced her pain
significantly improving her quality of life. She has a long way to go with daily
physical therapy for at least six months and continued physical therapy
thereafter but it is worth it.
I am looking forward to blogging more in the coming weeks
although I need to maintain my focus on the kids.
I want to thank all of you who have been so supportive
toward us during this time.
I know often times many of us wonder if there is any good
left in the world but I can tell you from my own experience there are still so
many wonderful people out there willing to lend a hand, send their prayers, and
listen when you are down. All you have to do is reach out.
Thank you to all my loyal friends, clients, and blog followers!
Love to each and every one of you and all those I hope to meet in the future!
Joely (Azzrian)
Joely (Azzrian)
